Belly Laugh Friday, January 4, 2013

As usual I’m late – let’s just pretend it’s Friday.

As most of you know, my strange illness has given me a belly that makes me look about seven months pregnant. After so many years I have been able to find the humour both in the queries and the responses I give to the queries.  Sometimes I actually look forward to bizarre responses because they make such good stories. Belly-laugh Fridays is my chance to share these humorous tidbits with all of you. Enjoy.

Sam

PW_oran1_1808_11

I try to come up with humorous responses to put people at ease when I tell them about my belly. One of my favourites is the following:

________________________________________________________________________

 “When are you due?”

“Well, actually, I’m not pregnant, this is all liver from a bone marrow disease. Have you ever seen a liver as impressive as this before?

“Well, uh…no.”

“It is a wonder. Doctors gather when I am about in order to marvel over this miraculous organ.”

_____________________________________________________________________________

And while it is said tongue in cheek, there is much truth in that statement. New doctors practically salivate in their eagerness to palpate my liver. Sometimes colleagues and medical students will be retrieved to view my notable organ. “You’ll never see one like this again.”

At a recent ultra sound appointment I was delayed by the technician because the doctor herself wanted to come in and see me. I worried that perhaps she had seen something concerning. In fact, she was simply keen to meet me in person and examine my liver.

I feel like I could use my own carny  “All right, step right up, ladies and gentleman. See first hand the world’s largest liver. You will never see a liver like this again. Come right this way. World’s largest liver. And for only a small extra fee you, too, can palpate this world class organ.”

I actually do keep pressing my doctor to find out if it is the biggest liver she has actually seen, but she won’t commit.

 

Ultra Sounds Mondays, November 5, 2012

 

Good morning everyone. It’s a cold day here in Ontario, Canada. I’m pulling out my longjohns tonight!

No new posts for you today I am sad to say (c’mon people, I’m waiting to hear from you!) So instead I thought I would post some links to previous contributors, so you can catch up on what they are up to.

 

Amy Marash has a great new cartoon here.

More wonderful work from Anna Moriarty Lev here.

Barbara Crooker’s poem “November, Sky Full of Bruises” could have been written for me. It make me think back to a November 12 years ago.

Dorit Fuhg has added to her portfolio of Art for Cancer prints – gorgeous.

Check out the latest works of my hero Viola Moriarty here.

Charles Phelps-Penry posted a newer cancer poem in July that I really like.

 

Well there’s a start. It’s a fertile bunch of creators that have posted over this last year. I would love to post your creative work. Take a look at submissions guidelines and keep the creativity flowing.

 

Enjoy the rest of your Monday.

Sam

Tuesdays at the chemo unit, Tuesday, October 2nd, 2012

So, it’s not  Tuesday, but I don’t seem to get to write this post until Thursday. Let’s pretend.

Tuesday was a loooooong day at the chemo unit. It was the day I received my iron infusion (a grande decaf soy latte iron). It seems there was a tubing problem. The darn little machine kept making that annoying dee-dee-dum sound  – a sound that was catching all over the ward.

Of course my restless legs were in full gear, so sitting for that long was something of a trial. But I was reminded of an incident that happened this summer.

We live in Stratford, Canada, a town known for it’s famous Shakespearean Theatre Festival. My son and I gorged ourselves on live theatre this year.

One afternoon we were at the main theatre to see a production of Much Ado about Nothing when my legs kicked into high gear. I tried to talk to them, to tell them to calm down, but instead I found myself squirming like crazy, stretching and unstretching my legs and generally being a nuisance to the people around me. I decided I had better leave. My 13-year old son was indifferent to my leaving and told me he’d meet me at home (a 13-year old who doesn’t want to miss any of his Shakespeare play – does it get any better? )

As I was leaving the theatre I was accosted by one of the ushers.

“Can I help you with something?’

“No, I just have this problem with restless legs.”

“Are you coming back?”

“No, I think I’ll just go home.”

She looked pensive for a moment and then said, “Do you think if you were in the director’s booth you could stay? You could walk around in there and still watch.”

I hadn’t been enjoying the play too much. Claudio’s treatment of Hero is despicable (especially knowing she’ll take him back in the end). However, this was an opportunity too good to miss.

“Sure, I’ll give it a try.”

She led me to an almost invisible door and, after climbing a few steps, I had the whole theatre spread out before me. I walked up and down the room, did some exercises, had a snack and thoroughly enjoyed this way of watching theatre.

Too bad I can’t exercise while I’m getting my infusion…

Sam

Ultra Sounds Mondays, May 21, 2012

Hello everyone,

It is a lazy Monday on a long weekend here in Canada. I hope you are all enjoying your day.

Today’s poetry submission comes from Margery Hauser. Here is what Margery has to say about herself:

In 1999 I was diagnosed with cervical cancer and had surgery that, at the time, we all thought had taken care of the problem.  However, it came back for a return engagement in 2008 and again in 2010, now taking up residence in lymph nodes and moving its way up from my pelvis into my abdomen. The poems below were written in response to various experiences during diagnosis and treatment.  I have had work appear in Poetica Magazine, Möbius, The Jewish women’s Literary Annual, Umbrella, and other journals, both print and online.

 

I am delighted to post some of Margery’s poetry for you. These poems reflect back to me my own experiences, in eloquent, elegant language. Look for more of Margery’s work later this summer here at Ultra Sounds.

 

Sam

 

 

Three Haiku

In the waiting room
time snails, stalls, stutters, suspends:
Impatient patient
– – – – – – – – – – – – – – – – – – – – – – –
Blue hospital gown
prevents exam room gooseflesh
but not chill of fear
– – – – – – – – – – – – – – – – – – – – – – – –
Clear skies and clear scans
I smile my way along streets
sparkling with sunlight
_________________________________
Before Chemo

Ninja-steeled for battle
black robed
I determine time and place
No victim helplessly shorn
before death march
nor shaven-skulled
shame-branded traitor
not a novice
humbly submitting to God’s will
Rather a warrior
defiant, powerful
who will not mourn
each disappearing strand
in shower or on pillow
I choose the time by my volition
parade my choice
prevail

Ultra Sounds Mondays, May14, 2012

Today’s submission, a personal essay,  comes from writer, Eularee Smith of Eugene, Oregon.  She is a cancer survivor of 20 years. Her Dad survived stage 4 melanoma for over 30 years. Her younger brother was not as lucky. He died of brain melanoma. Her writing reflects a personal perspective of hope and the joy of living. You can read more about Eularee at http://www.eularee.com

A Sacred Place

 by Eularee Smith

My younger brother Barry, passed away unexpectedly on July 1,, 2011, from melanoma of the brain. From diagnosis to death was less than three weeks. He leaves behind a wife, five children, six siblings and both his parents. And a garden.

After the memorial service, complete strangers told me stories of my selfless brother. From being an elderly neighbor’s on call handyman to offering his home to a homeless family for three months while they got back on their feet, Barry’s life resounded.

At one point, my sister in law and I found ourselves standing by my brother’s vegetable garden. Surrounded by a chicken wire fence with a gate adjacent to the chicken coop offering easy access to the free fertilizer. A common thread in our lives was the garden and our chickens. He and I would eat, breathe and talk gardening.

Together we stood silently staring at the hoe leaning against the gate where he last left it. My sister in law shared with me that she didn’t know how to garden.

“That was Barry’s sacred place. He would let me sit and watch but I was never allowed to do anything,” she said tearfully. “I don’t know what to do about the garden. It’s dying.”

I told her that was what it was supposed to do. The gardener was gone. Mourning the loss of its caretaker, the tomatoes were curled with withered blossoms, most of which had fallen to the ground. The peppers were stunted. Lettuce gone to seed and all were thirsty and sad looking.

It made sense to me that the garden was reflecting the tragedy of my brother’s death. At one point during the last weeks of his life, he said he knew he would never go into the garden again. Unable to leave his chair, let alone pick up the hoe, he looked at the garden through the window. If pain medication dulled the physical symptoms of the cancer, I believe that seeing his garden, even if through a window, eased the pain of the gardener’s soul.

When I had breast cancer, I planted an area of my garden with alyssum, a small white flowering creeper, shaping the letters G R A C E. I spent hours in the summer of 1992 in daily radiation and chemotherapy treatments. And just as importantly, I spent hours in the garden, keeping the weeds out and the growing letters trimmed neatly to spell out the blessings of my garden. It was as necessary to my fight as the chemo cocktails dripping into my arm. There were five women who I came to consider friends as we battled cancer together during the summer of 1992. Of the five women, I am the only survivor. I am a gardener.

I believe the garden reflects the gardener. Each is dependent on the care and the nurturing of the other. A simpatico relationship that grows and dies not only in seasons of the earthly calendar but also in the heart and soul of the gardener who tends it. I thought about taking the standing hoe to the weeds that flourished while the gardener was away but somehow, that didn’t seem right either.

I will give my sister in law a few books on gardening and she can take her time reading them. She can browse and wander through the pages and perhaps she will see my brother, the gardener, between the chapters on tomatoes and peppers. And then when the season is right, she may pick up the hoe and introduce my brother’s garden to a new caretaker. When the winter frost gives way to the new buds of spring, the gate will open and new life will bloom once again in my brother’s sacred place.

Ultra Sounds Monday, March 26, 2012

Bonjour everyone!

Today’s poem comes from Charles Phelps-Penry in Shanghai. It wins the prize for the most exotic locale (at least from my Canadian viewpoint – maybe Toronto, Canada is an exotic locale when you live in Shanghai).

I like the terse, tense language of this poem. To me, it effectively captures the feeling associated with a diagnosis. You can read more of Charles’ work at his blog Me and It.

Here is the bio Charles shared with me:

I was diagnosed with Oesophageal (Gullet) Cancer in September 2010 during a routine check for something else.  The shock was huge and I was very scared at the start.  I quickly went through tests and staging (Stage 3 with lymph nodes involved) and then on into 11 months of treatment which, after major surgery and chemotherapy, has been successful. I am back at work, active and feeling good.  The cost was almost a year of my life, being torn from all I knew at very short notice as we live inShanghai, and returning to theUKfor treatment, leaving everything behind.  I’ve learned much about myself, including facing my own mortality, and I’ve seen my family, especially my wife go through hell for me.  But in the end I still have my life, and I am so very grateful for that.  It’s not what it was but no bad thing that.  Cancer no longer defines my life, though it did for a time.  And I have to watch out for the beast coming back for another go, but I’m ready for a fight.  The fight of my life.

When Charles shared this poem with me, I had to ask him to define “spiv” for me (it’s just not part of my Canadian lexicon). Here is the definition he provided:

A “spiv” is a term used during and after WW2 for people who used to trade goods on the black market, they were flash but seedy, could get hold of stuff that wasn’t easily available, usually illegally, and it is not a positive word. 

Sam

CANCER

by Charles Phelps-Penry

 

No introduction

no knock on the door

no polite cough or tug at the elbow

 

Just creeps in

unseen, insinuates itself

invisible and

microscopic

 

Bides its time

lurking darkly

a chancer, a spiv looking for a break

 

When it finds a good grip

it clings on for dear life

my dear life

 

Bastard

 

The Reading Room

I haven’t shared any books lately, here are a few to consider:

Elaine’s Circle: A Teacher, a Sudent, a Classroom and one Unforgettable Year by Bob Katz

This story is about a remarkable teacher in Alaska and the community she created in her classroom. This community became very important the year that one of the students was diagnosed with and ultimately died of a brain tumour. It sounds sad, but I actually found it an uplifting book about the power of community.

Most of me: Surviving my Medical Meltdown by Robyn Michele Levy

Most of me chronicles Levy’s experience of being diagnosed first with Parkinson’s Disease and then, eight months later, with breast cancer. She can be bitingly funny as she tackles her “diverse disease portfolios”.

Bearing Up with Cancer: Life, and living with – Dr. Annie Smith

I haven’t read this one, but was intrigued by the description on Amazon:

“Bearing up with Cancer chronicles the life of Annie Smith and her battle with cancer. An honest, intimate and humourous book about a vivacious woman who taped chocolate bars to her abdomen as an energy source for her surgical team.”

 

Enjoy

 

Sam

Ultra Sounds Monday, March 19, 2012

Happy Monday!

Since I began working on this project, I have had the opportunity to connect with many wonderful people who are working in the world of creativity and cancer. One of these people is Sharon Bray, an author and facilitator of expressive writing workshops for people living with cancer. Sharon’s name comes up often in the context of cancer and creative writing. Her workshops sound powerful and significant for those who participate. She also moderates a blog called Writing Through Cancer, where she offers weekly writing prompts for people living with cancer.

I have been enjoying corresponding with Sharon. Though busy, she has spared time to offer me much advice and encouragement for Ultra Sounds.

Below is an article that Sharon wrote for the September, 2011 issue of Healing Journeys. She has kindly offered to let me repost this article in the blog.

Sam

WRITING IT OUT

Print This Page Email This Page

by Sharon Bray

Nearly twelve years ago, I sat in a surgeon’s office, feet twitching with impatience. I checked my watch. I’d waited twenty minutes. If he didn’t appear soon, I was going to be late for the meeting I’d scheduled nearby. I reached for a magazine. National Geographic, Sports Illustrated, an old issue of People. Nothing of interest. I sighed and check my watch again.

“Hello, Sharon.” The doctor came into the room, a file in his hand. I smiled.
“Hi, Dr. C.” My eyes darted to the file and back to his face. I felt a flicker of 
     unease. “So? What’s the verdict?”

It had been exactly one week since the procedure, a biopsy of my left breast, ordered the same afternoon the radiologist pointed to the constellation of calcifications visible on a mammogram and sent me across the courtyard to the surgeon’s office. My mammography was routine. The biopsy seemed, at the time, little more than precautionary, just to be sure. It was nothing to worry about.

Dr. C. sat down in a chair across from me, opened my file and studied the paper that lay on top.
“It’s cancerous,” he said. “Malignant.”
“Cancerous?” How could it be cancerous? I forced myself to pay attention, to make sense of the jumble of 
     words coming from his lips.
“Early stage. Non-invasive, but…”
“But?”
“We need to take care of it right away,” he said. “Left alone, it’s a bad act.”

I nodded my head as if I understood what he was saying. A bad act. “So, what’s next?” Cut to the chase, I thought. I have a meeting to go to. I don’t want to be late.

A lumpectomy was scheduled for the following week. “Fine,” I said, sliding off the exam table. At the door, I extended my hand to shake his. “Thank you, Dr. C.,” I said in my best professional voice, but the doctor didn’t let go of my hand.
“Sharon,” he frowned at me. “Are you all right?”

Of course I was all right. I had a meeting. If I hurried, I could get there on time.

It would be weeks after the lumpectomy, after the endless days of radiation and multiple appointments with a team of specialists, before the reality of cancer began to sink in. I existed in a fog, disbelieving and numb. I donned a blue hospital gown in the radiology department every afternoon and swallowed a Tamoxifen pill every morning. Still, I felt like a phony. How could I have cancer? I didn’t look any different.

I began to experience some unexpected side effects to treatment. My digestive tract suddenly malfunctioned. I lost weight. I cried a lot for no apparent reason. My husband and close friends expressed concern, but other than the conversations between my doctors and me, I avoided discussions of cancer. I carried guilt around like a sodden backpack. Other people had real cancers, the kind that were life threatening. I’d gotten off easy. Finally, at the urging of a friend, I signed up for a summer creative writing workshop.

Writing has always been the refuge I turn to in any difficult period of life. I’d filled dozens of notebooks with emotional outpourings after my first husband’s sudden death, but this was different. I’d be writing every single day for a week with a group of strangers. I balked at the idea, and considered withdrawing several times, but something kept pulling me toward it. I showed up on the first day of class, nervous, but determined to stick it out. I quickly discovered a gentle and encouraging instructor, and under her guidance, a safe and supportive writing environment. Nevertheless, I wore my protective veneer like a suit of armor, choosing to write stories that revealed nothing about what I was going through at the time.

On the very last day of the workshop, the instructor passed around a straw basket filled with slips of paper, a single line from a poem written on each. I closed my eyes, reached into the basket and drew a slip. I opened my eyes and read, “The hospital corridor was dimly lit.” My heart lurched. I stared at the words for a moment, took a deep breath and opened my notebook to a blank page. Words poured onto the paper. I described the radiology waiting room, blue hospital gowns, my silent companions, my feelings of guilt, my fear when the technician called, “Ms. Bray?” At the end of twenty minutes, I had written several pages.

When the instructor asked who would like to read aloud, I timidly raised my hand. “I will,” I said.

I finished reading and nervously waited for the group to respond. One by one, they began, describing how my words had touched them. Clearly, this was the most powerful piece I’d written all week. I felt something inside me open up. I had begun my journey of healing. Writing gave me the key to unlock the door, write into my experience, make sense of and discover meaning from it.

Cancer—or any other serious illness—changes us. Perhaps, as poet Jane Hirshfield said, “Illness remodels us for some new fate.” A year after my diagnosis, I began leading expressive writing groups for men and women living with cancer, providing the same supportive environment for them to write and share their stories of cancer just as I had experienced the summer before. I’ve been leading those writing groups for eleven years now, and thanks to the cancer survivors who write and share their stories with me, my life is richer than ever.


Bio: Sharon Bray is the author of two books on the healing power of writing during cancer: A Healing Journey: Writing Together through Breast Cancer (2004) and When Words Heal: Writing Through Cancer (2006). She leads ongoing writing groups at Scripps Green and Stanford Cancer Centers as well as a writing workshop for faculty and students of Stanford Medical School. She also is the author of the blog, www.writingthroughcancer.com, which features weekly writing prompts for men and women with cancer. For more about Sharon, seewww.sharonbray.net.

Writing resources

As I immerse myself in my own writing , I have sought out resources to help me develop my craft. I thought I’d share with you some of my finds.

A few months ago I told you about Sue Healy’s blog called Craft Tips for Writers.  I like her writing and find her blog entries useful and entertaining. She muses about writing in a thoughtful manner.

Live, Write, Thrive is another blog that I’m enjoying more each day. The author, C.S. Lakin, provides some wonderful grammar advice, discussions on the shape of a book (eg. she’s taken quite a lot of time on the first page and the first sentence) and poses challenging questions to the group. I look forward to receiving her postings each day.

I just joined The Creative Penn: Helping you write, publish and sell your book. It’s early days, but when I turned to it yesterday, the first page I saw was an excellent posting on writing memoirs. Her blog is on the top 10 list of blogs for writers.

I’ve also joined a group moderated by Janet Reid, Literary Agent. This is an entertaining blog that is packed with information on writing and publishing.

I know there are many more excellent resources out there. Feel free to share yours.

 

Sam

Tuesdays from the chemo unit, March 6, 2012

So I’ve decided that there is an inverse correlation between the amount of time a nurse takes to ponder which vein would be the best in which to stick my IV and the success of that IV. I would say about 95% of the time if the nurse studies my arm at length, tapping this vein or that vein, warming up my arm with a heating pad or putting the needle in ever so slowly then either the IV will fail (necessitating a second poke) or it will be more painful than usual. The nurses that are confident take a quick look at my arm and …jab… it’s done – clean and almost painless.  You could say I’ve become a conoisseur of sorts.

It reminds me of my oft forgotten maxim of the inverse correlation between my cooking style and taste. The longer it takes to make a dish, the more ingredients it uses, the more chopping that is involved, the more dirty dishes I create, and the greater quantity of the dish I make, the worse it tastes.  If I  make a good, simple meal, inevitably it will be tasty and we will run out before everyone has had their fill. 

I suppose those two examples are not exactly the same, but the common element is fussing and fretting over something. I wonder if it would be universally true to say that the more we fuss and fret or worry over something, the less successful it is. That’s not to say we shouldn’t put effort in, but it seems to me there is a difference between a confident yet open intention and overfussing. 

It seems to be the same with writing of any kind. How can we bring a confident  intention to the process of creating and revising, without worrying over it until it’s dead? Hmmm. Would this apply for artists in other domains? Any thoughts on this?

Sam